Student-founded · Funding ALS research
We are high school students in Indiana and Arizona raising money for ALS research and patient care. We have raised $25,580.84 so far, and every donation goes to the ALS Therapy Development Institute.
Partners
By Jessica Todd · September 14, 2026
“ALS receives significantly less funding simply because it’s a rare disease.”
Read the full article ↗“We want to keep raising awareness for the disease because a lot of people have heard about ALS, but it’s still not something people think about a lot.”
May 2025 · Where it started
Our PT150 project won first place in Computational Biology and Bioinformatics at the 2025 Regeneron International Science and Engineering Fair. We wanted to keep working on ALS after the fair, so that summer we started ALS Forward. The video is from the awards ceremony.
August 2026 · Our white paper
The next thing we worked on was the wait for a diagnosis. In the United States, people with ALS wait ten to sixteen months between their first symptom and a diagnosis, and median survival is two to five years. Our white paper looks at why the wait is so long and what local groups can do to shorten it.
September 2026 · Interview
In September we called the institute our donations go to. Alan Premasiri runs clinical research operations there. We asked him what has changed since he started in 2013, and what the ALS community needs from people who do not work in a lab.
Eight questions, 27:49.
In pictures
Where we stand
Grant & sponsor leads →$25,580.84
raised for ALS research
The total includes research grants and funding for patient care, not just individual donations.
Where your gift goes
Donations go directly to ALS TDI, which processes the payment and sends your receipt.
